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What is MEpedia?

MEpedia is a project founded by MEAction, powered by the patient community, and built by volunteers including patients, students, and researchers. The team at MEpedia are crowd-sourcing a knowledge base on the history, science and medicine of ME, CFS, and related diseases. But they need your help.

Imagine a website where all the information currently available about ME (and related diseases), from all over the world, was in one place. Imagine the possibilities. The newly diagnosed, who are confused and scared, unsure where to turn, can log on and access up-to-date information. If you are having problems finding a sympathetic doctor, you can log on and search for one. The media can use the site to research ME (and related diseases) and access correct information, rather than the bogus quotes often supplied by so called experts.

MEpedia can be used as a platform to educate medical professionals, whether currently training, newly qualified or experienced. It will serve as an invaluable research tool for all everyone. We spend so much of our energy fighting doctors against the tide of misinformation and disbelief, MEpedia would give us a database of knowledge to arm ourselves with. And the more information we can collate on one site, the more likely we are to find common cause or common treatment.

From the success of Millions Missing we already know how strong our voice is when we unite. MEpedia has already gotten over 4 million page views, 90% of it was written by three or four people. Imagine what could be achieved with more help.

Contribute to MEpedia today
You are probably telling yourself (like I did): “I’m not medically trained or qualified to contribute”, but there are many ways you can help. Anyone can create pages, write content, add links/citations, fact-check, or even just fix typos. Everyone has something to offer, whatever your skills & experience, even if you have never edited a wiki (like Wikipedia) before. Get involved and help the patient community identify all of the best and most important resources for our disease and its research, treatment and history.

There are so many different roles contributors can play, at every level of cognitive ability or technical expertise. Every contributor can play one or more roles. All are important and help MEpedia grow and improve the project. We all have limited energy but even small acts accumulate to create big changes.

For more information about contributor roles please click here:

So, how do you get involved?

If you are on Facebook please join this group.

If not, click here to get started:

Familiarise yourself with MEpedia and jump in. If you are unsure where to start, try adding some terms to the Glossary section

Together we can change our future

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For more personal stories, reviews, news, inspirational quotes and in-depth discussion, please head over to my Facebook page.